Author: LisaSaysThis

Loves people and Brighton and Hove Albion FC. Find me on Twitter @LisaSaysThis

What should poor Helen from TheArchers do now?

It was nice to get such a lot of interest in my blog about whether it was Helen or Rob Titchenor who needed to see a psychiatrist. As they are both fictional characters, it felt OK to surmise about their relative states of mental health, and also to remind people who were getting excited on Facebook and Twitter that having a mental illness is not a character flaw.

But right now, Helen is in turmoil. And because the writers, the producers and the actress have created someone people care about, there is a lot of advice flying around – to Helen herself, to her friend Kirsty, to her parents Pat and Tony, to her odious mother-in-law Ursula and to her abusing control-freak husband Rob. I realise that the scripts have already been written and the recordings made weeks ago, but nonetheless, here are my thoughts. They can’t help Helen, but they might help someone like her. Or their children, family and friends.

Should Kirsty break her promise and tell Pat that Rob hit Helen?

No. Because Helen has only just started to confide in her. It is really important for women who are abused by their partners not to experience what might feel like abuse from others. Helen is not in immediate danger. The best thing Kirsty can do is be there for her, listen to her and gently help her work out what to do for herself. It helps that Kirsty has sought advice from a domestic abuse website such as the wonderful Rise UK http://www.riseuk.org.uk/ It is important that Kirsty stays calm, despite how angry and upset she feels. There may come a time when she has to break her word, but not now.

Why hasn’t Helen’s psychiatrist done something already?

Again, it is vital to build trust. If the psychiatrist is doing their job properly, they will be carrying out a careful assessment of Helen. This should include checking for signs of abuse. I just hope they don’t allow Helen’s history of previous mental illness to mislead them. It is one of the curses for people who, from time to time, experience mental illness, that they can become defined by their medical history rather than it simply being a small part of who they are.

Isn’t it a good thing that mother-in-law-from-hell Ursula is going home?

I’m not sure. While Ursula is truly ghastly, she does offer some degree of protection from Rob’s more diabolical deeds. As far as we know, she isn’t the one who has been tampering with ovens and bathwater, hiding things or messing up orders at the shop so that Helen has started to doubt her own sanity.

What should Pat, Tony and Tom be doing?

They should also be listening to Helen, which means not necessarily believing everything they see or hear. And they should talk to each other and give voice to the individual concerns they are undoubtedly keeping buried under the surface. Family secrets are rarely a good thing.

But then they should be careful not to approach her together, as that could feel like ganging up. I think Tom might be the one most likely to gain her trust. Pat and Tony should make it clear that they are always there for her, no matter what has happened.

And finally, they should avoid recriminations and guilt. None of this is anyone’s fault. Except Rob’s.

Surely the idea of Henry being sent away to boarding school will bring Helen to her senses?

That’s a comment I read on Twitter. It is unkind and judgemental. Helen is vulnerable, abused and unable to think clearly. The chances are, Rob will make her believe that the pain of sending Henry away is something else she must bear for the greater good. But it could well be the trigger for Pat and Tony to stop trying to convince themselves that Rob is a wonderful husband and stepfather. Because whilst there are those who extol the benefits of boarding school, Pat and Tony are unlikely to be amongst them, especially not for their beloved five year old grandson.

What will happen to the evil Rob Titchenor?

Who knows? If life were fair, he would be prosecuted under the new laws covering psychological domestic abuse. He would go to prison, where he would get help to recognise that his own narcissistic tendencies are not only hurting other people, they are also damaging to him.

But life isn’t always fair. The chances are, Rob will somehow get away with having nearly ruined Helen and Henry’s lives, wrecked Charlie’s career, punched the saboteur, damaged Adam and Ian’s relationship, plus whatever he really did in the flood. And anyway he will be part of Helen’s life forever because of the baby, not to mention the claims he will undoubtedly make on her inheritence.

So we will have plenty more opportunities to discuss him on social media.

Surely this storyline has gone on too long? It’s making me distressed/mentally ill myself.

I disagree. Domestic abuse and mental illness are commonplace. If soaps were realistic, they would have many more such storylines. And this one is subtle. The woman is mature and the abuse is mainly psychological. I like the different angles the storyline takes. And that we can’t guess how it will end. If the most exciting thing to happen in The Archers was a risqué calendar, we’d be disappointed.

So I hope this particular storyline is allowed to run its course. It certainly isn’t making anyone who listens to it become mentally ill. That isn’t possible.
But it may trigger feelings in those who have been abused. Which is why helpline numbers are given at the end of the programme.

If you or someone you know needs help, call the National Domestic Violence Helpline on 0808 2000 247 http://www.nationaldomesticviolencehelpline.org.uk/

And if this story saves even one woman – or man – from domestic abuse, won’t that be wonderful?

How are you doing today?

I love talking about mental health. What could matter more? This blog is drawn from ideas I have developed (and squirreled) while thinking about well-being at work for a slot I did at the Health at Work Conference in Birmingham last week, and in advance of an NHS Employers webinar on staff well-being yesterday. I used an earlier version of this blog to give my talk, and I warmly thank everyone who contributed. Your questions and comments were wonderful and you will be able to see that i have made some changes because of them.

And what an exciting day yesterday was. Because the Girl Guides Association announced their first mental health badge. It has been developed with the excellent charity Young Minds. It uses theories about emotional literacy and resilience to help young people take care of themselves and help others. If only they had done this 48 years ago was I was a Girl Guide. And wouldn’t it be great if such an approach could be rolled out across all schools and colleges and youth groups? What a brilliant start this would give young people facing the world.

At the conference last week, we heard from companies large and small who are putting employee wellbeing front and centre of their investment strategies. And this isn’t because of any sense of duty or even kindness. They know that it pays. They want to know the best ways to help staff achieve optimum health and how best to work with employees who have physical or mental illnesses to manage their conditions and get back to work quickly and well.

If we consider the NHS as one employer, it is the largest in Europe, many times bigger than even the largest multinationals at that conference. And yet we seem slow to follow suit. I say we…I don’t work for the NHS any more. But having done so over a period of 41 years, I feel deeply concerned for its staff. So I was very grateful to take part in the NHS Employers webinar.

Well-being and resilience are the new buzzwords. They are being used everywhere. I like them. But I also have a few issues with them. If we aren’t careful, well-being strategies can feel as if they place responsibility on the individual. And I see well-being as a partnership between the individual, their employer, their co-workers and anyone else they choose to invite to help them achieve their optimum health.

I like the Maudsley Learning model of mental health very much. It shows a series of steps and explains that we are all on a spectrum of mental wellness. I like the way it removes a sense of us and them.

But there are nonetheless inherent dangers in such models. Unless you have felt the terrifying symptoms of psychosis, clinical depression, an eating disorder or any of the other hundreds of mental illnesses, you might think that mental ill-health is merely an extreme version of the distress that anyone might feel when something bad happens. Using well-intentioned euphemisms like mental distress, intended to reduce stigma, can add to the isolation felt by people who experience mental illness. It’s important to say that most people won’t ever experience mental illness, just as most people won’t ever experience cancer or diabetes.

But 1:4 of us will. And we need skilled help from our employers if we are to go back to work at the right time and give of our best. The last time I was ill, I was lucky that I got the right help. Not everyone does. And that is why I do the work I do now, campaigning to improve things in the NHS and beyond for patients and staff.

I shared two specific insights at NHS Employers webinar. The first is that we separate mental and physical health for laudable reasons but at our peril. Obesity might get more sympathy if it were treated as an eating disorder; the most effective treatments combine diet with psychological support, including CBT techniques. Exercise is known to increase endorphins and improve mental wellbeing as well as physical health. People with serious mental illnesses die on average at least 20 years too soon, mainly because of associated poor physical health. And there is an increasing evidence base that people with chronic physical conditions such as cancer, heart disease and strokes have a greater tendency to experience clinical depression. Which comes first doesn’t really matter.

Employers should, in my view, use this knowledge of the inherent links between mind and body to devise their wellbeing strategies and make this explicit. Bringing the mind and the body back together needs to become the next Big Thing.

And secondly, I am increasingly of the view that people who experience mental illness, who are open about it and learn to live well with it despite the massive challenges it poses, can become even better employees than those who don’t have these experiences. I’m talking about people like many of the friends I have met since I came out about my own depression. Such people show extraordinary resilience, compassion for themselves and others, patience, creativity and highly developed social skills that would be valuable in any workplace. They are truly amazing. I try not to have regrets. But one of mine is that it took me far too long to realise that my experience of mental illness could become an asset, if I let it. So now I’m trying to make up for lost time!

I want to share links to my other blogs that I think might be helpful to anyone thinking about wellbeing at work.

This one is about taking the plunge and talking about your own mental health, perhaps for the first time.

This is my plea to be kinder about obesity, because what we are doing now simply isn’t working.

This is about the things you can say and do to help a friend or colleague who is experiencing mental illness. And the things that really don’t help.

These are my ten commandments for working in mental health

This is a blog in which I thank people who have helped me in my journey of self discovery – still very much a work in progress.

And this is my Letter to You. Which you might want to suggest to someone who you think may be struggling.

Life is hard for most employees these days. Working in the NHS holds particular challenges. Stress at work doesn’t have to make people ill. But it can. Employers can make a difference. And so can co-workers.

Please take a moment to think about your colleagues, especially the ones who are having a tough time, seem a bit quieter than usual or not quite their usual selves. Ask them how they are. And really listen carefully to what they reply.

And if you are one of the 1:4 of us who experience mental illness from time to time, I say this: go us. Because we rock. 😎😎😎

Is it Rob or Helen who needs a psychiatrist?

Last night, some of us were tweeting about The Archers. Specifically, about the scumbag Rob Titchenor whose latest act of psychological warfare against his wife Helen was to hit her and then make her feel so bad that, by the end of the 13 minute programme, she had apologised for making him do it. He then delivered his coup de grace, that she was in need of psychiatric help.

As you can imagine, this generated much debate. Quite a few people said that it wasn’t Helen that needed a psychiatrist, it was Rob. They said he was sick. I believe they are wrong. And I want to explain why I think this.

Is Helen mentally ill? And if she is, could Rob have caused it?

Only someone who is clinically qualified can really answer this question. But as Helen is a fictional character and therefore unavailable for an assessment and formulation, we are entitled to make assumptions.

Helen has a tendency to depression, anxiety and problems such as anorexia in part because of her personality. She is someone who sets herself high standards and drives herself very hard. She has an overdeveloped sense of responsibility. She judges herself harshly and punishes herself for her own perceived failings. And she reacts badly to criticism from others.

She has some additional risk factors. She is, or rather was, a single mother. She has experienced several major losses: her older brother died in a farming accident when she was a teenager. Her last partner died by suicide. Also, her father was recently very ill. Her younger brother went missing for a year and her best friend felt betrayed by her.

All of this makes her vulnerable. So Rob hasn’t exactly caused it. But he has exacerbated it. And now he is using it against her.

Isn’t Rob also sick in the head?

Rob is also fictional. We only know what the writers have shown us. But again, we can make assumptions.

He certainly shows narcissistic tendencies. He cares a great deal about his own feelings, but little for those of others. He views the world as there to serve him. He constantly reminds Helen that she is Mrs Titchenor now, and that she must dress and act to please him. Henry must be “obedient”. The coming baby is “my son”. The house revolves around Rob . He is jealous and actively excludes those Helen is close to.

He also has a nasty temper, is untrustworthy and lacks morals. He hit the hunt saboteur and later lied about it. He cheated on his first wife with Helen, and lied to them both. There are suggestions he may have lied when he worked with Charlie. And there has been at least one occasion where he either raped Helen or was rough enough during sex to cause her bruising round the neck. She seems uneasy near him.

But these are not signs of mental illness. They are the tendencies of all bullies, cheats and those who get through life by using others. Rob has chosen Helen because she is vulnerable, and has resources that he wants – she has her own house, and will inherit half of the family farm business. And she can give him a child.

What about his mother? Is she mentally ill?

Aah, Ursula. She is a manipulator. She probably learned to behave like this as a small child herself because her own family was dysfunctional. Her relationship with Rob is deeply dysfunctional too. She wants to please him, and will go to any lengths to do so. She perceives Henry’s unhappiness as bad behaviour. She thinks sending him away to boarding school will help him. Her interest in Helen’s pregnancy, labour and other intimate matters such as Henry wetting his bed is prurient. I wonder whether she is a sex abuser. She gives me the creeps.

Why can’t Pat and Tony see through Rob and Ursula and why can’t they see their own daughter is so unhappy?

Because they are nice people. And they are deeply invested in Helen having made the right choice. They feel bad about not warming to Rob at the beginning. The truth for them is too awful to contemplate…at the moment.

What will happen to Helen?

Who knows? Only the writers. Perhaps her love for Henry will override her feelings for Rob, and she will confide in someone like Tom or Kirsty and they will help her to escape. Or perhaps she will be assessed by a mental health professional who will ask all the usual questions about things that are troubling her, and leave her enough space to express the doubts about Rob that we can already see lie just below the surface. Or perhaps she will continue to be terrorised by him until something even more awful occurs. This is what happens in real life. And even if they get away, women who have been abused like this may suffer from a form of post-traumatic stress disorder for the rest of their lives.

Why do I mind when people confuse mental illness with bad behaviour and say that people like Rob Titchenor are mentally ill?

Because badness is different from madness. You can have both. But they are not the same thing. And until people stop equating them, and the media stops using terms such as “paranoid schizophrenic” as a term of abuse, we have a very long way to go.

Of course we need to provide skilled intervention for those who abuse. They may have defects in their personalities (sometimes called narcissistic personality disorder, psychopathic personality disorder or sociopathic personality disorder) that cause them to lack empathy and feel compelled to hurt others. These terms are understandably helpful in forensic mental health services. But they should not be bandied about by the rest of us. Because this is skilled work. And also because, for people who have been diagnosed with a Borderline Personality Disorder, which has at long last been recognised as an extremely traumatic, treatable mental illness, being lumped together with people like Rob under the overall heading of personality disorders is distressing and adds to their stigma and alienation.

Time to Change is the national mental health anti-stigma campaign. Over the next five years, for which most of the funding is now secured, they will be tackling some of this harder, more intractable stuff with people who need more persuading. And people like me will be volunteering and writing stuff and speaking at events in support of their campaigns until we have achieved greater awareness, understanding and empathy for people like Helen.

The use of mental illness as an explanation for people who do abhorrent or otherwise inexplicable things is part of the stigma that those of us who experience mental illness face on a daily basis. Please try not to do it. Thank you.

PS: I’ve just noticed people on Twitter saying this storyline is affecting their mental health. Hmmm….It may trigger thoughts and feelings in those who have been abused and/or experience mental illness. But it won’t cause mental illness.

Anyway, people who don’t like it can always switch off. And watch Happy Valley maybe….

Wishing and Hoping and Blogging and Tweeting

Bad selfie with 2 lovely Twitter chums @AgencyNurse and @AnnieCoops

Last Thursday, 3 March 2016, I facilitated a couple of seminars at the East Midlands Leadership Academy social media conference. Two days before the seminars, I invited anyone who felt so inclined to help me prepare via Twitter and a blog. I then used an updated version of the blog I had initially written as my audio-visual aid for the seminars. It was my very own small action research social media project.

Thank you to the 450 people who read the original blog, commented on it and/or joined the two seminars. I called the seminars Wishing and Hoping and Blogging and Tweeting, which hopefully gave attendees a hint that I’m no expert and that I take a don’t-wait-for-permission-but-ask-for-forgiveness approach to my own use of social media.

You can see the first blog and the comments on my blogsite directly below this one. Thank you very much indeed to Zoe Bojelian, Liz O’Riordan, Chris Richmond, John Walsh, Phil Jewitt, Annie Cooper, EM, Natasha Usher, Sian Spencer-Little, Lloyd Davies, Linda, Vicki W and Laura Hailes for taking the time to comment on the blog.

I apologise to Fenella Lemonsky, Gill Phillips and anyone else who tried to comment but were stymied by WordPress and/or their own social media platforms. I don’t know how these things work, but I know how annoying it is when they don’t.

I also warmly thank everyone who helped share my requests to get involved or commented themselves via Twitter, including @bipolarblogger @hpiandycowper @davidgilbert45 @AgencyNurse @whoseshoes @jbmccrea @kirsti79 @andrew_davis @noshinakiani @carolinewild @LindsayHobbs51 @HubTube @OrganicLemon @LisaMillerVC @NHSE_PaulT @AlysColeKing @PeterMEnglish @HollowDave @MargoJMilne @endless_psych @JYoolz @QueerAndConcise @ethicConsult @allyC375 @HealthWKTD @ pgtips42 @LearnHospice @alisonleary1 @Lindawr45160138 @Lucy EMLA @LucyMorley1 @JennyTheM @PatientOpinion @DaniG34 @JOMWLever @emetalic @DanileOyayoyi @MConroy09 @GeorgeTruSATCGirl @AMKane87 @ImtiazGiriach @ElizabethJSays @DebElSayedd @GeorgeJulian @LyndsayShort1 @NickiH @bigronstevenson @wendynicholson @andrewbeee @rosgodson @wendyJNicholson @gremlin2C @mynameisAndyJ @sara_J_Brown @penny_thompson @jackiecassell @claudemmx2 @roz_davies @sweeternigel @nonnazoo74 @garethpresch @anyadei @beckyOT @claudia_writes @spencer_sian Sincere apologies to anyone I have misspelt or missed out.

Most of all, I want to thank the two sets of participants at the seminars. When I asked them where they were on a scale of 1 = social media virgin – 10 = social media warrior/maven, the lowest score anyone gave was a 4, and I think that person was being overly modest. There were lots of 7s and 8s and quite a few 9s. Given I would put myself at 6.5, it felt rather like a master-class in reverse. Which is the story of my life.

I’ve drawn my personal learning points from all of this into a list below, and included some references for you.

It is possible, and great fun, to crowd-source a seminar, even a podium address in the way I’ve just done. Yes, it takes more time than the usual approach. And it doesn’t finish on the day. It is important to thank people properly who have made the effort to help you. I hope I have paid enough attention to this. The benefits are the potential to engage many times more not only with your direct audience but also with others via social media. And to widen your own learning in ways you could not have imagined.
My personal approach to using social media is how I tend to approach most new things – I jump in and have a go, and work out the rules as I go along. This isn’t the wrong way, but nor is it the right way. It’s just my way. However you choose to get started, putting yourself out there is undoubtedly scary. It is important to take care. If you are in a high profile role and/or a health care practitioner, this very well constructed article by Annie Cooper and Alison Inglehearn is just great. It will help you stay safe.
My session last week was about using social media as an individual who may (or may not) happen to work for an organisation. NHS social media guru Joe McCrea (@jbmccrea on Twitter) gave a fascinating presentation at the same conference about the use of social media by NHS organisations. He is about to publish a seriously interesting report – please do keep an eye out for it on his wesbite.
The mental well-being side of social media can be either overlooked or understated, in my experience. I thank several folk for reminding me to remind others to be aware that social media is only a very small part of the world. It can be a source of solace and support, as I have often found. But it can also be vicious, mean, self-righteous and damaging. And because people can hide behind anonymity, bad behaviour is invariably worse, goes more unchecked and can be more intrusive than in face-to-face interactions. I wrote this blog about Twitter last year. I think what I said then still holds true.
Lots of people want to share their ideas by blogging but have yet to get started, and are keen to choose a good blog-site. I can’t recommend any specific sites because I’ve only used WordPress. I do like it, but like all software, it has downsides. I would just remind you that, however much you like the site you have chosen, unless you are paying for it, you and your readers ARE the product. If we want independent writing to thrive, we MUST somehow pay for books, journals, newspapers and maybe even blog-sites. Otherwise it won’t be long before the only things available to read are the ones that carry adverts or are sponsored from a commercial or otherwise partisan perspective.
Quite a few people have pointed out the difference between posting comments on social media sites like Twitter, and blogging. Which is that the former is for swift repartee, and the latter is for more considered thoughts. I agree. But I would also argue that blogging helps us to work out what we think. And we can use Twitter and other chat sites for this too. After all, there is no point getting involved in conversations if we have already made up our minds about something. Here is a bit more about why I blog.
This slide deck on the role of social media in health is from my extraordinary friend Dr Helen Bevan (@HelenBevan on Twitter – if you don’t know who to follow, follow Helen). Helen is a genius in new ways of thinking, including social media. She presented this at a social media get-together event at the beginning of last week. I’m sad I couldn’t go, because it looked highly informative and fun.

Finally, I thank Annie Cooper for sharing this lovely video poem about the social media imprint we leave behind us. Like all good things on social media, I promise it will make you think really hard. Which is the best sort of thinking.

Please join my social media experiment

I haven’t done a blog like this before. I’m trying what I hope will be a relatively simple experiment to help me run some seminars on Thursday 3 March 2016 for the East Midlands NHS Leadership Academy.

And you can help me!

If you read the blog before Thursday, I would love to have your comments at the bottom of this blog to help me help the people in the seminar groups think about the use of social media in the NHS.
And if you read it afterwards, you can help me to think about it some more. Comments would be really welcome from seminar participants and others. Because like all of you, I am a lifelong learner.
I intend to use this blog as my main audio-visual aid for the seminars. It is therefore shorter than usual and presented mainly as
- Bullet points!
As well as seeking your comments in bold, I will be encouraging comments and discussion from the attendees.
I plan to start by asking people where they are on scale of 1 – 10
- 1 = a social media virgin
- And 10 = social media savvy warrior
- I am pitching the seminars and the blog towards the people who place themselves towards the lower end of this scale, but I will try to engage the more informed attendees by inviting their comments, as I am inviting yours.
How does that sound to you?
I will then introduce social media as a form of media where the control lies with the individual.
I will illustrate my point with a newspaper story that ran about me recently (two blogs down from this one if you haven’t heard about it) and how I was able to redress the balance myself via Twitter, Facebook and my blog.
Is the above example too self-indulgent, do you think? And if it is, can you think of a better one?

I will then list the different forms of social media thus:

Social media products:

Facebook: An early product. I use it to stay in touch with family + friends. But people use it very successfully for work, even instead of a website
Instagram – good for sharing photos, I am told.
Linked-In: For keeping in touch with people at work, finding jobs, making connections. Again an early product. I don’t like the interface. But I’ve missed some important messages from people who have tried to contact me that way, so be warned!
Skype: Free video calls. Can be erratic. But great for interviews or meetings with people far away. Much cheaper than video conferencing
Twitter: Admission time – my favourite. I love the discipline of the character limit.
Viber: Similar to WhatsApp. Also free calls

YouTube: used by President Obama, Justin Beiber and me!

WhatsApp: Great for staying in touch with individuals and groups. And free phone calls!

Does that sound overwhelming? Any glaring omissions? And does expressing my preferences help or hinder?

Benefits of using any/all of the above:

Control
Thrift
Contacts and connections
Equality

Things to look out for:

No such thing as a free lunch – you are the product for the companies providing these “free” services
Warning: social media can be addictive
Loss of privacy with some formats (see my blog On Forgiveness)
Trolls and other monsters (see my blog Please Take Care, Twitter can be Cruel)

Again, your thoughts please?

Blogging

Why do it? (see my blog called Why do you Blog?)
And why not do it? (hint: there are lots of good reasons)

This is where I hope we will have the richest discussion.

I’d really welcome your comments here too please.

Some NHS-inspired bloggers that I think are worth following:

Zoe Bojelian Wonderful mother of a brilliant boy who we will never forget
Annie Cooper Senior nurse + social media genius – she will be at the conference
Andy Cowper The most original writer on health policy I know. Also v funny
David Gilbert Writes in a brilliant, challenging way about patient leadership
Paul Jenkins Ex CE of Rethink, now runs a mental health trust. Deep thinker
Liz O’Riordan A breast surgeon with breast cancer. Stunning
Charlotte Walker A mental health patient (like me). Writes in real time. Gutty, startling insights
John Walsh My personal compassion guru
Rob Webster A brave, wise leader who shares generously

The list is of course not exhaustive, but I’d love your thoughts – who would you add?

My plan is to share this blog via the seminars, including all comments received, to stimulate discussion. And I will invite those who take longer to decide what they want to say, to add their comments after the event.

My final question to readers of the blog is this:

Would you find a seminar structured in this way useful?
And if not, and I really want your honest answers, please tell me how you would improve it.

I promise to incorporate your ideas. And I will also let you know how it goes.

Thank you very much indeed for joining my social media experiment!

One day mental health stigma will be a distant memory

Back in 2014, the team at Time to Change held a round table event that forced those of us who care about NHS mental health services to face an unpalatable truth. Which was that 1 in 3 people who used services experienced lack of compassion and even stigma from where you would least expect it, those working in those very same services. This finding has been repeated several times, and featured again in last week’s Mental Health Taskforce Report.

In August 2015, I wrote about how this made me feel and about the Time to Change project I volunteered to chair here. And about the negative reactions it initially invoked here.

Now it’s time to pop my head above the parapet again.

Along with some amazing people, including 4 experts by experience and senior colleagues from our 2 pilot sites Northumberland, Tyne and Wear NHS FT and 2Gether NHS FT, we have carried out some action research directly with NHS staff to explore what gets in the way of compassionate care and the shifts in attitude that are needed.

It hasn’t all been plain sailing. But we have learned a lot, especially about what works. And this week we are launching a campaign within 6 volunteer mental health trusts, which include our 2 pilot sites plus 4 others. From the early work with our pilots, we know that staff value time out in a safe place to talk about attitudes and values, and to discuss why sometimes they fall short of providing care to a standard they aspire. The materials are being made available online via Time to Change across the whole NHS.

I want to make a few things clear from a personal perspective. We won’t shift attitudes by finger pointing and blame. The people at Time to Change know this. Their approach is positive, supportive and empathetic. They know what they are talking about. They have achieved measurable, sustained success in shifting public attitudes over 7 years of work. Our project with NHS mental health professionals builds on the same approach, tailored to local circumstances.

We are acutely aware that staff who work in mental health services are under greater pressure than ever before. We know this from the hard-hitting findings in last week’s Mental Health Taskforce Report. Our project doesn’t deny this. But we are operating in the real world. And we have to start where we are now.

Stigma is an ugly word. And the stigma of mental illness is deep-seated and far-reaching. It manifests in the way mental health services get side-lined. Two weeks ago, my old boss Lord Nigel Crisp published his report about access to mental hospital beds. With charm and precision, Nigel ticked off Nick Robinson on the Today programme for trying to change the subject to the junior doctors’ dispute. Nigel pointed out that it was illustrative of the very problem mental health services face, lack of sustained attention. And whilst the Mental Health Taskforce Report got top billing on the day it was published, we also know that it will disappear without trace unless we all stop talking and actually do something to turn mental health into a priority.

Not all journalists are guilty of stigma. I thank Shaun Lintern at HSJ, Andy McNicholl of Community Care and Michael Buchanan at the BBC for their sterling work uncovering swingeing cuts over the past four years, which some still deny despite the evidence laid bare.

Stigma exists amongst some politicians and parts of the NHS. The rhetoric of parity of esteem has been trotted out whilst at the same time commissioners, faced with unpalatable choices, are allowed to disinvest in those services people are least likely to make a fuss about, i.e. mental health. And not just in the NHS, but also the third sector, where much vital provision has been wiped out in recent years and is at least in part the cause of the current mental health bed crisis besetting most of the country.

The unkindness I experienced many years ago from a nurse in A and E is repeated across acute hospitals and other parts of the NHS daily. I recently heard an acute trust chief executive say this: “These people don’t belong in A and E.” (My italics).

So who exactly are “these people”? They are people like you and me. And people like him think we are undeserving. And many, including him, still believe being mentally ill is somehow our own fault.

Our Time to Change project isn’t aimed at tackling everything at once. We have to eat this elephant together, in bite size chunks. Working with Time to Change and supported by NHS England, I know we can succeed.

Lisa Rodrigues CBE

Writer, coach, mental health campaigner. And a recovering NHS Chief Executive

This piece also appears today in the Health Service Journal

A mixed week: updated Sunday 21 Feb 2016

It’s a good thing we don’t know what the future holds. Otherwise we might never get out of bed.

On Monday, the long-awaited Mental Health Taskforce Report was published. And it made grim reading. Behind the awful stories about people being let down or receiving no treatment at all is the spectre of stigma. How else can it be that government ministers have spouted forth about No Health without Mental Health and Parity of Esteem whilst at the same time services have seen real terms reductions to funding far greater than other parts of the NHS. And despite referral rates continuing to rise? The suicide rate is rising again too, even among groups not previously considered to be at high risk.

The coverage was wide and mainly pretty fair. (I say mainly; the Metro managed to annoy almost everyone on my Twitter feed with an offensive headline.) I was impressed by what Paul Farmer and all my other friends on the taskforce have achieved, and by the measured response of NHS England and the Secretary of State. But instead of feeling proud to have played my tiny part, and girding my loins for the sustained effort that will be needed to hold the government and the NHS to account, I noticed my mood gradually getting lower throughout Monday. By the evening, I was overwhelmed with sadness that it has taken so long for so many people to be heard, and that many lives have been lost along the way. And I was assailed with despondency and a sense of utter failure for what I hadn’t managed to achieve in all those years I was running mental health services and had so much opportunity and influence.

Things got worse on Tuesday. I woke to find myself the subject of an article in my local paper, the Brighton Argus, along with a massive photo of me with a long-forgotten hair colour. It said that 19 staff at Sussex Partnership, the trust I used to run, had received severance pay-outs totalling several millions in the past four years, and that I had received the largest sum, £275k, in 2014.

It was wrong in every respect. The highest payment was £27.5k not £275k. And I hadn’t received one at all. And I felt tearful and scared and powerless and all the other things I remember about being public property for the 13 years I was a chief executive.

I minded most because leaving the trust caused me great anguish. Anticipating it almost certainly led to my last serious depression. Going back to work after my breakdown for another 8 months was very hard. It mattered greatly to me that, having managed to do so, I should leave on my own terms.

A few phone calls later, I was reassured that the story had appeared because of a combination of cock-up and further cock-up. Thank you to everyone concerned for your honesty; mistakes are always forgivable when people tell the truth. By the afternoon, The Argus had removed mention of me from their website and agreed to publish a correction the following day. Which they did. And today they published a letter from me here (there may still be issues with this link if you are on a smartphone. Try Argus Letters in your preferred search engine and ask your browser to use the Argus desktop site. Or try this link directly with the trust website http://www.sussexpartnership.nhs.uk/whats-new/no-severance-package-former-chief-executive-note-lisa?platform=hootsuite)

As I left the house yesterday afternoon somewhat surreptitiously to do some local errands and keep an appointment to give blood, I wondered what people must be saying behind my back. And I was reminded what it felt like to have no place to hide.

However, the week wasn’t all bad.

I was asked to appear on Radio Surrey and Sussex this morning to talk about the stigma of mental illness as part of the BBC #InTheMind series. You can catch me, Danny Pike and the wonderful Sue Baker of Time to Change here 1hr 10 mins into the programme.

Our choir has been rehearsing for a charity concert on Saturday afternoon – details here https://twitter.com/slondonchoir/status/699507596353499136 All welcome.

Brighton and Hove Albion drew away on Tuesday night with Championship leaders Hull and are now third from top, and only one point away from an automatic promotion spot to the Premiership.

And I have at last finished the first draft of my book, which is about being a chief executive who occasionally experiences doubts and depression.

One day I hope you will read it.

Update: I spoke too soon, which after 21 years following the Seagulls, I’ve found it’s easy to do. We got stuffed 4-1 yesterday by Cardiff City. Have a feeling this season could go right to the wire, just like every other year!

But the choir concert was – well I don’t have enough superlatives. Life – affirming will do. And today I helped my lovely husband Steve, who supports me in all my endeavours, to raise money for The Tall Ships Trust, a youth development charity to which he is very committed, via a jumble sale of boat stuff. The two of us were up at 5.00 am. By 2.00pm, we had made just shy of £1,000 which will help kids from disadvantaged backgrounds to experience the joys and lessons that can be learned through sailing.

And I’ve heard from hundreds of people who’ve said kind things. Which for someone like me means more than I can possibly tell you. On Tuesday I was in the depths of despond. Today, on balance, I’m really happy to be me.

Thank you.

Cock-up or conspiracy?

Blogging can be addictive. I try to limit myself to one a week. But after the Secretary of State announced yesterday that a pay “settlement” will now be imposed on junior doctors, given that extended negotiations have so far failed to reach a conclusion satisfactory to all parties, I feel I have something to say.

I know many junior doctors, including the daughters and sons of friends plus those I meet directly through ongoing contact with the NHS. These young people, who hold other people’s lives in their hands on a daily basis, are sensible, bright, compassionate, committed and driven. I don’t understand how a Secretary of State who was brought in to settle down the NHS after the mess the previous one created can have allowed himself to get into an intractable dispute with so popular and articulate a group of NHS staff.

But nor do I buy into conspiracy theories about privatisation by stealth; there would be better ways to achieve this than by alienating an essential section of the workforce. It is far more likely to be a cock-up. Someone probably advised him that the existing contract was, as most senior NHS managers including senior doctors know, overly complicated and no longer fit for purpose. (If indeed it ever was. This is not the fault of the junior doctors, by the way.)

And so he decided to immortalise his legacy as a moderniser by spearheading the introduction of a new contract. But because he isn’t a manager himself, he set out without understanding that the only way to change the contracts of any group of public sector staff, especially doctors who have possibly the most effective union in the country to negotiate for them, is to improve on their current terms and conditions. There is nothing that upsets people more than attempts to introduce changes that significantly worsen their position. And at the heart of the dispute is the fact that for everyone else in the NHS, Saturdays are not part of the core working week. And although there is little choice for the majority but to work on at least some Saturdays, doing so incurs additional payment. (That people in shops and restaurants don’t get paid extra for working on Saturdays these days is of no relevance.)

The Secretary of State also fell into a communications trap by talking about a 7-day NHS, when the group he was targeting already work shifts across 7 days. He chose the wrong example. To get a true 7-day service, he needs to persuade all other NHS staff who don’t already do so to work shifts over 7 days. And to find considerably more of them because spreading 5 across 7 just makes a thinner spread. And that would cost a great deal of money, which he doesn’t have.

What I know from my junior doctor friends is just how difficult it is to get onto a training programme that takes account of personal circumstances. These young people are already in their mid – late 20s. They have slogged away for 10 years plus to get to where they are now. Only the most elite get the pick of training jobs in university teaching trusts; everyone else is bundled around the country with little choice on short placements that have to be filled, because they are the medical workhorses of our NHS. This plays havoc with personal relationships and family life. So they are not a group for whom losing what little control they had over their Saturdays was ever likely to go down well.

With all this in mind, chief executives of trusts work to a bottom line, which is to deliver safe services within the money available. And 20 of them have found themselves in an invidious position. These 20 were asked whether the latest offer being made was, in their opinion given the circumstances, fair and reasonable. Having replied in most cases that on balance, they felt that it was, they found their names being included in a letter from the chief negotiator to the Secretary of State in support of something about which they had not been asked, ie an imposed settlement. For the sake of the point I want to make next, it doesn’t matter whether this was a cock-up or conspiracy. (I suspect cock-up, because they are far more common. And we humans make mistakes.) The letter caused a massive flurry on social media. And these people had to decide whether to keep quiet, incurring the wrath of their own junior medical staff and others who support the doctors, or come out and say that they had not agreed to the imposition, potentially putting their own careers at risk. That the majority did the latter fills my heart with hope for the NHS.

And my key point is this. To be a leader in today’s challenging NHS, there are seldom going to be obvious right answers. You will frequently be faced with dilemmas of this nature. If you don’t have the nous to work out when to put your head above the parapet and when to stay quiet, plus the courage to do the former at the very time it seems most lethal to do so, you haven’t got what it takes.

In other news, the Head of Google, Europe told the Public Accounts Committee yesterday that he couldn’t remember how much his own remuneration package was. Either he really couldn’t, in which case he is an idiot and has no right to be in charge of anything. Or he dissembled because he knew it to be a sum of many millions, embarrassing with Google under fire for paying so little corporation tax. Chief Executives of trusts have their salaries published every year and get pilloried for it in newspapers like the Daily Mail. And they all know exactly how much they earn, which is a tiny fraction of the forgetful man from Google. And yet each carries many times more responsibility than he would have a clue how to handle.

My worry is that there is a scarcity of people with the right attributes and courage to do these NHS leadership jobs. And we really, really need them. As we do our wonderful junior doctors.

A bit of courage

The more worried I feel about expressing my views on a particular topic, the more interest a blog seems to generate.

I’ve written this in anticipation of the Mental Health Taskforce Report, finally due out next week. Although, I’m unsure what you’ll think, I feel the need to say some things I could not have said when I was doing my old job running mental health services.

Mental health services are undoubtedly scary. But they are not all the same. The atmosphere and standard of care even on different wards in the same hospital can vary widely. It depends on the expertise and most of all the compassion of the doctors, nurses and the people in charge. If you have had a poor experience of care, either as a patient or a family member, that is terrible. It is vital that we face the fact that 1 in 3 people say they experience stigma within services. The Time to Change project I’ve been chairing addresses this, with more to report later this month. But at the same time, we must do all we can not to terrify people who need treatment. The chances are they will receive care that will really help. And if they start out assuming the worst, it will be even harder for the staff working with them to establish a therapeutic relationship. And this is the most valuable treatment tool available. I know this from personal experience.
The standard and availability of care in mental health services also depends on the attitudes and expertise of those running and commissioning these services. There is a real and present danger that, faced with wicked choices of saving vast sums of money from the NHS, commissioners look to make savings which will cause the the least outcry, ie from mental health. This isn’t an opinion, by the way. It is a fact. In particular, they look at most expensive care, which happens to be in hospitals, and persuade themselves that the local population can do without most or even all of it. But they can’t. To try to “re-engineer” aka cut beds without careful testing and sustained investment in evidence-based alternatives is irresponsible and dangerous. And yet this is exactly what has been done and continues to be done all over the country right now. Lord Crisp’s report into the availability of acute mental hospital beds published yesterday laid the facts bare. It was a good start. And the access targets it proposes will help. But we still have a long battle to rid ourselves of stigma towards mental health services not only from society but also from the rest of the NHS.
Alcoholism and misuse of drugs are symptoms of mental distress and/or of underlying mental illness. To treat them simply as addictions is cruel and pointless. It may seem cheaper in the short term to separate such services from the NHS and employ unqualified staff to provide care. And it may be politically attractive to take a punitive, non-therapeutic approach to those who self medicate with alcohol or illegal drugs. But to do so condemns vulnerable people to a half life of pain and a premature, horrible death.
There are millions of treatments available for physical illnesses. The same is so for mental illnesses. But why is it that people think they have a right to comment on the treatment of others who are mentally ill in a way they would be unlikely to do for, say, diabetes or heart disease? It’s true that psychiatry and psychology are inexact sciences. This is why they take more expertise, humanity and humility than the other disciplines of medicine. So if you feel tempted to comment on someone else’s treatment, unless you are their trusted clinician, please don’t.
There is no hierarchy of mental illnesses, and no patients who are more “deserving” than others. People who experience psychosis don’t deserve more pity than those who have bipolar disorder, or vice versa. And a short bout of clinical depression can be just as fatal as anorexia nervosa. Please remember this and put away your judgements.
You can’t see mental illness. And that’s part of the cruelty. Getting up and going to a cheap cafe to spend the day with others who understand the challenges of mental illness might sound easy to you. If you feel inclined to bang on about the value of work to those for whom the thought of being compelled to attend a job interview causes them to seriously consider jumping under a train, please shut up. Just because some people don’t get sympathy from tabloid newspapers doesn’t make them any less of a human being than you.
I’ve no problem with the use of words like bravery to refer to those experiencing cancer. And I know from friends with cancer that they have no choice but to be brave. But can we please recognise the courage, guts and determination of those who experience life with mental illness? And can we stop talking about suffering, because it implies passivity and weakness. The one thing I know about every person I have ever met who lives with a mental illness is that they are anything but weak. They are creative and heroic, in ways those who’ve never faced a life such as theirs can only imagine.

People who live with mental illness should be applauded and lionized. Not criticised, preached at, commented on, misunderstood and shunned. I hope next week’s taskforce report will recognise this.

Go us. Thank you.

How do you feel today?

They say you should do something scary every day. I’m not sure. Although I do know that I need the occasional exhilaration of putting myself in an uncomfortable position and overcoming my nerves to make me feel fully alive. Such opportunities came along a bit too frequently when I was a chief executive. But these days I probably don’t scare myself often enough.

Today is the annual Time To Change #TimeToTalk day. Last night, the choir I recently joined held an open mike session. And I decided to terrify myself at the last minute by offering to do a turn.

Although I can follow a tune and love to sing, I am not like the other wonderful acts that got up and entertained us. I have no special musical talent. But I can talk about stuff.

So I found myself standing there and explaining to a packed pub why I had decided to join the choir. Which is that singing with other people is really good for me. Since school choir days, I have yearned to sing again in a choir. I am full of wonder at being part of something greater than myself. I love having to concentrate really hard in order to follow the music. It moves me when a piece we have faltered over suddenly comes together in glorious harmony. Singing with others of a much higher standard helps me to raise my own game. It feels visceral yet sublime.

And I told them about my history of anxiety and depression, and the impact it has had on me, off and on, over 45 years since I was 15. I talked about stigma, including self stigma. And I told them them that I knew I wasn’t alone, because at least 1:4 people in that pub were like me, possibly more. I told about the research of the positive impact of singing on mental well-being.

And then I asked them to join me and celebrate Time to Talk Day by talking to someone else about mental health.

How did it go? Well, I was nervous of course. But they were lovely. I got clapped and cheered. There were a few tears. And some lovely conversations later. I shouldn’t really have expected anything else. The choir is amazing and our conductor MJ is not only a multi-talented musician. She is also an inspiring, compassionate leader. She gets the best from all of us, as singers but also humans.

If you have experienced mental illness but feel shy about telling people in case they judge you, maybe you could do something scary today? Please think about taking the plunge and talking to someone about it, what you do to cope but also how it is only one thing about you. Talk to a colleague, a friend or just someone you happen to bump into. Use Time to Talk Day as your excuse. And ask them about their own mental health. Listen really carefully to what they say. I think you will be pleasantly surprised by your conversation.

And how do I feel today? I think you can probably guess :):):)

Lisa Says This

Using what I've learned to help others